Teeing off for a cure: 100 golfers play to help fight a rare form of muscular dystrophy

One hundred golfers today raised tens of thousands of dollars to help fight a rare form of muscular dystrophy at the Bella Vista Country Club in Marlboro.

News 12 Staff

Sep 13, 2021, 4:25 PM

Updated 949 days ago

Share:

A hundred golfers today raised tens of thousands of dollars at the Bella Vista Country Club in Marlboro to help fight a rare form of muscular dystrophy.  
One amateur golfer will win $13,000, the largest purse ever offered according to organizers. But the focus is on the $60,000 raised for JAR of Hope, a charity founded by a Monmouth County dad James Raffone, whose son is battling the rare disease.
There's no cure for Duchenne muscular dystrophy, an aggressive form of the disease mainly affecting boys that is often fatal before they turn 21. There are only around 300,000 cases in the world -- 20,000 here in the states and just a handful in New Jersey, which is why James says raising awareness of this disease is so important.
“We fight every day, 24/7, to try and not only raise awareness but to raise funds to move the science forward and find a cure for this disease or at least the therapy to slow it down because children who suffer from this disease by the age of 15 are basically quadriplegics,” says Raffone.
It’s the second golf outing in a month for the charity. They will have raised $160,000, but an even bigger event is planned for the spring.
Raffone says in March, they plan on dropping 2,000 golf balls from a helicopter over a green - each ball purchased with a $1,000 donation. The first ball in the hole will win a $250,000 prize -- the rest of the money will go back to JAR of Hope, which is currently funding a study of several patients in New Jersey.


More from News 12
Man who set himself on fire outside Trump trial dies of injuries, police say

Man who set himself on fire outside Trump trial dies of injuries, police say

2:19
Scattered rain showers overnight; sunshine returns Saturday afternoon

Scattered rain showers overnight; sunshine returns Saturday afternoon

1:42
Police: Marlboro teacher accused of inappropriately touching student faces charges

Police: Marlboro teacher accused of inappropriately touching student faces charges

0:32
Man who lit himself on fire outside Trump trial has ties to New Jersey

Man who lit himself on fire outside Trump trial has ties to New Jersey

0:56
Graffiti of former Palestinian militant Leila Khaled found spray-painted at Rutgers University

Graffiti of former Palestinian militant Leila Khaled found spray-painted at Rutgers University

0:09
Police: 2 men critically injured in Newark shooting

Police: 2 men critically injured in Newark shooting

2:16
Public warned to keep their dogs away from seals at the Jersey Shore

Public warned to keep their dogs away from seals at the Jersey Shore

0:59
Jersey Proud: 3 men running the length of New Jersey for ‘Dylan’s Wings of Change’ charity

Jersey Proud: 3 men running the length of New Jersey for ‘Dylan’s Wings of Change’ charity

0:35
Tesla recalling nearly 4,000 Cybertrucks because accelerator pedal can get stuck

Tesla recalling nearly 4,000 Cybertrucks because accelerator pedal can get stuck

1:01
New Jersey water companies make plans to adapt federal ‘forever chemical’ guidelines

New Jersey water companies make plans to adapt federal ‘forever chemical’ guidelines

1:54
Authorities: 2 children at Port Reading school become sickened after ingesting marijuana gummies

Authorities: 2 children at Port Reading school become sickened after ingesting marijuana gummies

2:45
Business owners say they are losing business due to Route 71 bridge being stuck in up position

Business owners say they are losing business due to Route 71 bridge being stuck in up position

1:42
Prosecutor: Remains found at Wall construction site were of ‘advanced age’

Prosecutor: Remains found at Wall construction site were of ‘advanced age’

0:27
Prosecutors: Atlantic City’s Central Pier bursts into flames; 1 man dead

Prosecutors: Atlantic City’s Central Pier bursts into flames; 1 man dead

0:25
Boil water advisory issued for parts of Monmouth County

Boil water advisory issued for parts of Monmouth County

0:48
Ridgewood mayor shares photos showcasing renovation of former Warner Theater

Ridgewood mayor shares photos showcasing renovation of former Warner Theater

1:37
Officials: Some Marlboro schools, Trenton Board of Ed receive bomb threat 2nd day in a row

Officials: Some Marlboro schools, Trenton Board of Ed receive bomb threat 2nd day in a row

0:31
Start of Sen. Bob Menendez's bribery trial is delayed a week to mid-May

Start of Sen. Bob Menendez's bribery trial is delayed a week to mid-May

0:35
How to get rid of unused or expired medications

How to get rid of unused or expired medications

Show off your team spirit! Share your photos with News 12

Show off your team spirit! Share your photos with News 12