Manalapan man to climb Mt. Everest to raise awareness about son’s rare illness
A Manalapan dad is reaching new heights on his journey to raise awareness for a disorder that his son has battled for nearly nine years.
James Raffone will climb Mount Everest to raise awareness for Duchenne Muscular Dystrophy. It is a rare disorder that gradually breaks down muscle. It affects over 300,000 boys worldwide.
“I will tackle Everest. I will hike up the base camp to raise awareness and funds and to show the world my desperation to find a cure for this terminal illness,” Raffone says.
Most boys with Duchenne don’t live much past their teen years.
Raffone says he hopes to raise $95,000 toward clinical trials to find a cure for the illness at the University of Florida.
More information can be found at Raffone’s organization, JAR of Hope.