EDISON - There is a homegrown charity effort happening in New Jersey to help a young girl who is dealing with one of the rarest diseases known.
Brianna Feeney is living with Pallister Killian Syndrome, a disorder that took her abilities at birth. Brianna's mom, Patricia, says her daughter is a rare girl overcoming a rare condition, and that has inspired people in Central New Jersey to help.
A group of residents donated time, material and effort to build a wheelchair ramp for the 5-year-old. They also rallied by her side this weekend as she participated in an aqua therapy session.
With treatment, Brianna can now move in the pool, as well as see and hear. Her doctors say only a few hundred people have PKS worldwide.
An ongoing fundraiser is being held in Brianna's honor. Details and links to her mother's blog are on News 12 New Jersey reporter Ranji Sinha's Facebook page.